My thoughts for today!

Hello my Lupus Warriors. have read posts of some of you in Lupus Flares. I assure you THINGS DO GET BETTER. I was diagnosed in 1975. I experienced the weight gain, falls, rash, everything possible that Lupus can do and more. BUT THINGS DID GET BETTER. My Lupus went into inactive in July 2003. I was on prednisone 28+ years. There were many good days that outweighed my bad days - getting married in 1981, having my son in 1984, attending his sports events, etc. Although I hurt, I hurt doing the things I love. I recommend you do what you can and that's it. Of course I pushed myself on many occasions and yes I paid for it. BUT I ENJOYED MYSELF. At one point in my life I would go to 8 a.m. mass and THEN sleep all day to recouperate so I could go to work the following week. I can truly say that through it all I was a SURVIVOR. Of course there were things I could have down without, as a result of Lupus: lupus kidney disease, hysterectomy, bunionectomy, knee repair of cartilege, colon cancer, open heart surgery (aorta valve replacement), dialysis, etc. But I do keep my focus on the good things around me: my husband, son, daughter in love, 6 grand-children, my job, groups I belong to, church, family and friends, THIS IS WHAT KEEPS ME GOING. I retired from my job after 28 years because the start of dialysis took a toll on me. But now that I am doing home hemo (mon-fri @ night), I am working part time at the local community college as a math tutor, and I tutor on the weekends. I LOVE TUTORING. Find something you love and do it as your body lets you. Sometimes I do cancel sessions, because my body says NO. I am in tune with my body and know when to stop, know when to argue with docs about my health, know when to just sleep and not feel guilty. ahahahahahahha Yes you have to deal with ignorant (only because they do not understand) people, but do not let them pull you into guilt and depression. Do what you have to doin spite of them. KEEP MAY COPIES OF LUPUS LITERATURE. PASS IT OUT TO EVERYONE YOU MEET, ESPECIALLY TO YOIUR FAMILY WHEN THEY SAY STUPID STUFF. AHAHAHAHAHA Gotta laugh at them and keep going. Well I'm off my high horse. HAVEA LOVELY DAY LUPUS WARRIORS.