Found a great forum on DAVITA.COM 1/13/12

I am really excited to read all these posts.  I had called my doctor's office this morning to have a sonogram of my arm to make sue the fistula  was doing fine.  Of course she would not let me in.  I am not on dialysis but would like to know if the fistula is progressing along properly.  I feeling blood pumping at the ends but not in the middle.  She said all should be okay.  Do I have reason to worry? Got the fistula on August 15, 2011.  Really trying to ensure diet is okay.  But that is a crazy thing within itself.  LOW SODIUM? LOW PHOSPHORUS? GLUTEN FREE (allergy to wheat)? LITTLE DAIRY (lactose intolerant); ETC ETC ETC  This is all so crazy.  But I have had Lupus Kidney disease since 1989.  So I guess I have lived a long time with it.  Not looking forward to dialysis at all.  but I am willing to do whatever it takes to live!  :D  Was on chemo () 1998-2001.  On celcept since 2001.  Initially the dose was too high and I could not walk or anything for weeks.  Much better now. :)