Friday, September 12, 2014

MY SOUL LOOKS BACK AND WONDER HOW I GOT OVER!

Hope my testimony encourages someone.   JMI

MY SOUL LOOKS BACK
AND WONDER
HOW I GOT OVER

THIS TOO SHALL PASS!
2 Corinthians 4: 17-18 "For our light and momentary troubles 
are achieving for us an eternal glory that far outweighs them all.  
So we fix our eyes not on what is seen, but on what is unseen,
 since what is seen is temporary, but what is unseen is eternal."
KJV – King James Version

Through many dangers, toils and snares
I have already come;
'Tis Grace that brought me safe thus far
and Grace will lead me home.

The Lord has promised good to me.
His word my hope secures.
He will my shield and portion be,
As long as life endures.

1975, Systemic Lupus Erythematosus.  
1989, Lupus Kidney Disease
Chemo, Intravenously: 1998-2001, Tablet:  2001-present
     Too much at first,  feet black, wheel chair, crutches
Dec 2009, Diagnosed with Colon Cancer, colon resection, NO CHEMO REQUIRED, TRANSFUSION 
2011,  Fistula installed in arm. 
2012, Fistulagram, Internal Bleeding
Started Dialysis, Dec 12, 2012. 
In center was not goood
Started home Hemo training, January 2013
started home Hemo 
June 6, 2013, hospitalized, catheter put bacteria in my blood
June 14, 2013, hospitalized, Open Heart Surgery, Aorta Valve Replacement.  
July 7, 2013, Gall Bladder surgery, Stayed longer in hospital longer than open heart surgery, TRANSFUSION   
Was really tired, so RETIRED Jan. 31, 2014

Yea, when this flesh and heart shall fail,
And mortal life shall cease,
I shall possess within the veil,
A life of joy and peace.
STARTED FULL TIME AS TUTOR
August 18, 2014, Started work as MATH LAB ASSISTANT for CALHOUN CC

Now I have 6 grand babies!












Amazing Grace Lyrics

John Newton (1725-1807)
Stanza 6 anon.

Amazing Grace, how sweet the sound,
That saved a wretch like me.
I once was lost but now am found,
Was blind, but now I see.

T'was Grace that taught my heart to fear.
And Grace, my fears relieved.
How precious did that Grace appear
The hour I first believed.

Through many dangers, toils and snares
I have already come;
'Tis Grace that brought me safe thus far
and Grace will lead me home.

The Lord has promised good to me.
His word my hope secures.
He will my shield and portion be,
As long as life endures.

Yea, when this flesh and heart shall fail,
And mortal life shall cease,
I shall possess within the veil,
A life of joy and peace.

When we've been here ten thousand years
Bright shining as the sun.
We've no less days to sing God's praise
Than when we've first begun.

Amazing Grace, how sweet the sound,
That saved a wretch like me.
I once was lost but now am found,
Was blind, but now I see.

Friday, August 8, 2014

MY THOUGHTS - SATURDAY, 08-02-2014

Wow!  I have not written on my blogs for awhile.
Time for me to get a routine.
Lots going on in North Alabama.
Education systems all messed up!
Huntsville City Schools is fighting desegregation laws.
Ministers fighting the wrong battle!
So busy fighting being disrespected than trying to setup GED prep programs for those in their congregants.
Lord have mercy!
I am so sick and tired meetings and arguing that lead to nothing positive and productive.
That's why I don't go!
Have really joined the t-shirt society as a retiree!
Really have no desire to dress up any more. 
Must admit in 2007, the new environment threw me into a dressy pants and tops modes.
No more two-piece suits, just for meetings.
No they are official in the back bedroom.
Not wearing anytime soon.

I have spent a lot of time trying to get a part-time job.
Want to work, but short hours.
I just don't want the daily grind.
hahahaa hahahahah ahahahahah
Calhoun CC on many occasions.
Limestone County Schools
Want to get my 5th year Education Masters, but you have to have a district request you.
So sent my name to 4 districts, no bites.   UGGGHHHH!
Probably only save that for their full-time employees.
I will have start over and do another Bachelors degree.
Have to take the -olgies:  Biology, Sociology, Philosophy, etc.   hah ahahahahha hahahaha

I AM SLOWING DOWN.
I have worked numerous hours tutoring.
Searching for additional work to help the students.
Ensuring they get everything in on time.
It has been exhausting!
But, I have learned that I have to be a Moses as he was instructed Jethro!
Absolutely tooooo busy!!!!!


ALL FOR NOW!


JMI



Monday, June 30, 2014

FB POST ON JUNE 20, 2014

FAMILY LOVE! When we had the bad tornado come through northern Alabama in April, I was dialyzing and tooooooo sick to leave my dialysis chair, less on my house! My family was so mad that we all didn't leave and go to the home i own in Huntsville Al. But my soul was at rest, and I sat in the chair and watched the trees sway and the rain and wind blow. BUT MY FAMILY STAYED WITH ME! Although in closets. HOW MANY OF YOU ALL LOVE YOUR FAMILY ENOUGH TO SUPPORT THEIR DECISIONS, although crazy ones!!!!!???????

THE DIALYSIS WAIT!

I get up enthused for life saving dialysis! But after about 2 hours, I'M READY TO GET OFF! I only have 54 minutes to go! I AM SLOWLY LEARNING PATIENCE! GLORY! JMI

GOOD MORNING WORLD!!!!!!! ANOTHER DAY!!!!!

ANOTHER DAY!

Sunday, June 29, 2014

No longer REAL THIRSTY!


I use the crave at least a gallon of water per day!
i could not eat without drinking a lot.
I would feel like i was choking with following up each bite with water.
I would base my tip on how well they would give my water glass full.
NOW, I have no desire for fluids.
Know this not good.
I need water to cleanse my body!
Praying for direction!

JMI

Sunday, May 4, 2014

3 weeks of not feeling well, UGH! Sick & tired of being sick & tired.

Ugh!
Can't figure out what is wrong with me.
BP HAS BEEN LOW.  ON THE WAY BACK UP.
Lightheaded, dizzy, unbalanced mobility, legs feel full, back hurts, hips hurt, eyed are super dry, throat and nose intermittently inflamed, site is fuzzy along peripheral vision, shoulders sore, spine behind breast hurt, etc.
Went to ER.  nothing wrong according to BLOOD WORK, CAT SCAN, ETC.........
Made an appointment to see NEPHROLOGIST, ONCOLOGIST, RHEUMATOLOGIST, ETC......

I can only sit and sleep comfortably in my dialysis chair.   
Since my aorta valve replacement, can't lie down flat comfortably.  
Too tired to go to chiropractor, but I've paid for a year already.
Have auto withdrawals with Wellness center.  Irv won't go unless I go.
Got to get back into the gym.
Too tired to go to beautician.  Can't sit up that long to have hair done.
I have had insomnia on numerous occasions.
Better if I change my hormone patch twice weekly.  I should never forget.  It pops up on my calendar.  But tooooooo tired to move.   GOAL:  DO BETTER!
I should be use to the process of the doctors taking a year to figure out what's wrong.
Before 12/12/2012, EVERYTHING pain or ache was blamed on my LUPUS.
Now on my dialysis!
I have to do my own medical research to assist the doctors.   So tired!



I have been 
(1). looking for part time jobs, OPM screwed up my Check!  Ugh!

(2)  searching for contracts to provide tutoring (Math & Science Academy, Inc. (MSA)
Have had lots of work lately.
Staying up all night meeting obligations!
MUST STOP!  Not good for my health!
But, some vets want our services but can't use us because we are not an approved Veterans Admin contract.

(3)'promoting my Stores

(4) searching for building for my school (Janice Mitchell Isbell Academy, Inc. (JMIA))
Preferably to put on my property.
Will put in new drive way

(5) working in the ministry
Higher Dimensions in Prayer Ministry
Redemption Outreach Community Ministries GED Program
St. Joseph Catholic Church Choir and Reader
Ministering on Facebook, Twitter & MySpace
Love preaching and teaching.
Want to set up a tent in my front yard for a revival!
Want to set up meditation spots on property.

(6) enjoying all the wonderful time spent with my grand children 
Boobies:  Candy, Tre, Manny, CC, Millie!

(7) deciding on volunteer work.  Druthers are
Tutoring at Tanner and Athens High School
Reading in nursing homes

(8) making changes to house and property
Deciding on lawn furniture, lanai, deck, 
Tents for my boobies.  Tre says I need two.  One for the girls and one for the boys.  Smiles!
Time for camp outs!
Plants and Flowers
Picnic area for grills
Plant evergreen trees along property south border
Plant rose bushes across front of property, east border

(9) trying to grow my public speaking business, JMI PROFESSIONAL SKILLS INSTITUTE (JMIPSI)

(10) remembering to write in my blogs
RECLAIMING HIGH SCHOOL DROPOUTS

MY LUPUS JOURNEY

GADGETS JUST 4 U!

(11) Finishing voice over for my videos for my YouTube channels
MSA
JMI PSI

(12) contemplating the use of RIDX in our septic system. Have been think about this for about 2 years.  Some of the guys I work with do not use it, but THE COMMERCIALS!  Hmmmmmmm!
Sister used bleach this past week.  Lady who sold us the house said not to use bleach.
Forget to tell her.  Hope no harm to bacteria in septic tank.

(13) Researching the options to becoming a certified teacher.
The alsde.gov is a labyrinth!

ALL FOR NOW! 


As you can see not sure how I got things done while working full time.
JUST JESUS!

Sincerely for today!
JMI

TAGS: sick, tired, restless, temp, low blood pressure, lupus, kidney disease, dialysis, busy, working hard, tutor, math teacher, gadgets, renal, reclaim drops, 

Wednesday, April 2, 2014

Today was gym day

I am so out of shape!
I exercised my little heart out.
Managed to put in an hour of exercise.
Legs, arms abs, etc.
All worked out.
Dialyzing now.  Pen in hair as to not forget where it is as I record the numbers during dialysis.
But, I am so glad The Lord gave me strength to exercise today.
My back stil is bothering me.
Will continue exercise to strengthen my back muscles.
I had cramps all through exercise.
Praying I do not cramp during dialysis.

Got a customer to proof 3 pamphlets via Craig's List.
Also posted my tutoring services on Craig's List.
Want to tutor and do papers full time as a career, now that I am tired.
My goal is to make $90,000 a year more.
Re activated my website http://isbells.gnld.net.  
Will sell products via the website.
About to listen in on a conference call, if I remember.  
If not will listen to playbacks on tomorrow.

Ordered some juice and nutritional supplement powder.
http://isbells.gnld.net
The powder has 9 grams of protein.
The juice has phyto nutrients.
Trying to get healthy.  I am eligible for a kidney in December 2014. 
But I have to meet the weight requirement. 
I must lose about 50+ pounds.
I am changing my diet and am exercising on a regular basis. 
Really working on increasing protein intake.  
Losing bone in my jar.  The dentists keeps reminding me of that fact.
Ordered protein bars to enhance my protein intake.
Perfect Zone Bars
I can't eat too much meat.  Really bothers my body.

All for tonight!

JMI

Saturday, March 29, 2014

Muscles Cramps & Home Hemodialysis

One of my biggest problems on dialysis is muscle cramps. I usually experience them at the end of the treatment. I notice when I take off too much fluids, I cramp. Usually if I drink a bottle of water (approximately 500 ml) the cramps subside. Otherwise my husband gives me approximately 200 ml of saline solution through the saline tee. One time it took approximately 300 ml of fluid. Mosts of my muscles are in my feet and calves. But I have them in stomach and back on numerous ocasions.

Other situations which causes me to cramp during dialysis are (1) I fail to drink enough water during the day. Particularly when I’ve drank sodas, tea or other juices; (2) I do a lot of walking during the day. My bursars are inflamed and I cramp a lot when I walk. So when I dialyze the bursars cramp.

The cramps hurt so bard. The muscles are sore for days after the incidents. I massage the muscles and eventually their better.



http://www.kidneypatientnews.org/treatment/hemo_problems_cramping.php

Additional ns information about muscle cramps may be found on the above webpage.

Monday, March 24, 2014

Another Day's Journey

Body is so tired.
Went to ST LOUIS this past weekend, along with Irv and Mom.
7 hours to get there and 7 hours back.
I must have taken toooooo much water off Friday night.
I cramped all day Saturday at the School of Healing!
Particularly in my hip bursors!  GLORY!
Really enjoyed the word delivered!
Discussed hindrances to our healing.
Discussed hoe to teach others to go higher in prayer for healing.
Excellent TESTAMONIES.  
I was so encouraged to be in the ministry and answer the call of God to Pastor.
Not led to start a church.  Just share the Love of God and his Redemption.

We slept in a CHEAP MOTEL WITH CHEAP MATTRESSES!
All of us hurt so bad the next day!
My neck, spinal cord, lower back, legs, feet all HURT SO BAD!
Mom was in bed all day.
I felt much better after visiting the Chiropractor!
Fell good also because I drove myself.
Will get another appoint for next week if still hurting at end of week.

Worried I might not meet the weight requirement for a TRANSPLANT.  
GOOing to wellness center now.
Lord give me strength to persevere!
My upper arms (fat) cramps when I do the arms exercises.
But I will take my time and do them. 
I must firm up my arms!
Thighs are ridiculous. 
I was on prednisone for a week for Bronchitis and gained more than 10'pounds!  Ugh!
Bottoms of my feet hurt so bad!
Can't find no relief!
My sinus keep draining lots of GOOP!  Just crazy!
Still coughing up lots of phelm.
Might need another dose of Musinex.
Didn't take it with me this weekend.  Ugh!

Still having problems with bowels.
All this medication probably the culprit. 
But I'm on it!  Taking softener.
Do not want COLON CANCER AGAIN!

Taking a Calculus 1 class at local community college.
Trying to review the subjects for better tutoring.
Will take 2 and 3 also.
Then on to higher Math Classes!
Want to deliver the best service to my tutees!

Just finished dialyzing @ 9:12 p.m.
Only took 1 kilo off.
Scared to do 2 again.  The cramps are really bad.  If I don't drink enough water, I cramp really bad!  GO FIGURE!  Thank you Lord for allowing me to urinate! I do not take this for granite.  I know my water intake is not restricted because of my ability to urinate.

Had the right knee repaired before.  A piece of cartilage was loose!  
But I believe it's loose again.
Will invite the new drug that is injected in your knee for more cushion.
I'm walking with bone on bone because the Lupus has eaten all the cartilage.

All for now.
Watching Sony Open!

Friday, March 14, 2014

Get a good book

Books Books Books

Curdle up with a BIOGRAPHY, DIY, MYSTERY, ETC BOOK - Hard Copy, eBook, Audio Book

http://t.co/CZlMk5FyRj

Wednesday, March 12, 2014

Another Day

We had a rough time dialyzing on Mon., 03-10-2014.  First I went to emergency room.
Was told I have Brochitis and Pleurisy.  Was given antibiotic and the dreaded Prednisone.  
Was feeling bad all over.  My whole chest hurt so bad.  Every time I breath deeply my chest cavity hurt really bad.  Then we came home and started dialysis.  The SAK expired mid dialysis.  Irv had to hang 4 bags, switch the chicken foot line, etc,  we managed.  But we also had to draw blood.  A very daunting night. Maid not finish until 2 a.m.   I could not sleep.  Fell asleep at 4 a.m. And had to be up at 6 a.m. In order to go to an appointment at 8 a.m. In HUNTSVILLE.   Was dehydrated.  But the tech got the blood.   Was so tired when returned home. 
Then, today I got a call from Huntsville Hospital telling me I have two non-calcified nodules on the upper lobes of my lung. May get a result of my bronchitis.  What?  The doc had not said anything to me!  She said her job is to go over charts and that she saw this on X-ray but was not noted in chart.  Asked my permission to forward to my docs on record.  Yes! Duh!   I'll wait for doctor's office to call me then I will call a lung doc myself.   Will try to get doc here in Athens vs going to my doc in Huntsville.  Probably nothing to worry about.   MERCY JESUS!
Got a lot to do.  Help with grands.  Tutor.  Take next test.  Ugh!  I will survive.

All for now.  Dialyzing late tonight also!
   Smiles

Janice
His Servant

Friday, March 7, 2014

At the doc office

Irv an I have been here since about 0840.  Appointments at 0855 and 0900. 
It is now 0941.  I am tired, exhausted and lifeless.  Did not get any sleep last night.  My back, knees and neck are hurting.  The last thing I want. To do is wait!  Ugh!
But that's how it is.   Joining the wellness center today to get off at least 30 pounds. 
Have to slow down eating meat.  Must find other sources of proteins.
I want the biggest salad about now.   Money is funny, but God is good!
Blow dried my hair straight this morning.  It's gonna be a big poof by tonight!   Ha ha ha ha ha 
Watched lots of Mary Mary last night.  I hurt because they hurt.  But as Erica said, lots of people are praying for them!
So sorry to hear Rita Thaler Alongi lost her son.  She's a dear friend of mind from work.  We worked together in the Apache PMO and the Chinook PMO.   Just a very nice person.  Praying for her and the family.
Finally got my thank you cards off, about a month late, BUY GOT ER DONE!
Was riding the mower yesterday and making good time of cutting front years.   One of the blades bent at the tip when I went into a hole.   The hole that was made by husband when he drove the car in the front yard and got stuck.  Breana and Irv Jr had to get the car out of the mud.  That was so funny!  But not when I rode into the hole with one of the mower's tires. Ugh!
Did not have the kids over yesterday.  Missed my Boobies.
Took my test on yesterday, another B.
I must keep studying!  An A is what I want!
Retaking my Calculus series (I, II, III).   Must be ready to recall quicker when I'm tutoring.  Smiles.
Gat a call from a previous student.  Had to resend her transcript.  The previous one burned in a house fire.  She has a daughter.  Her parents are doing fine.  Glad yo hear that!
Irv and I are putting together a cabinet for my Mom.  It is great how the parts are put together.  But laborious.  It's for her Bathroom.  Next we have to put together a vanity.   Escapades!
Loving living in West Limestone County.  Pretty quiet until the boys bring out the guns!  Ughhhhhhhhhhh!  Otherwise OK.  
I put together a shelf for myself, along with a shoe rack for our bedroom.  No more tripping over shoes!
Finally out of doc office @ 1016!  Wow!
Said my back is the problem, not kidney stones.  
Must do stretching exercises.
Joining wellness center today!
I am feeling sick, stomach aches, everything aches!  Headache.  Sinuses!
That's hard explaining that everything hurts!
On my way to clinic (my new clinic is Pansy) to pick up Sharps container and tourniquet.  
Done!



Sent from my iPad
MRS. JANICE M. ISBELL
@jmirenal
@janicemisbell
@JMIProfSkills
@MathSciAcademy
@IsbellAcademy
@ReclaimDropouts
@AffordableHCare
@GadgetsJust4U

Wednesday, February 12, 2014

Busy day but loved it

Today i and Irv worked with the kids.
Math, handwriting, sentence structure,
Watched ABC youtube videos with the baby.
Really tired.  Slept about two hours.  Whew!
disappointed, made 83 on my test.
retaking Calculus sequence.




Wednesday, February 5, 2014

Another day in life of a LUPUS patient

02-05-2014

About to dialyze.
My stomach is hurting.
Otherwise Ok.
Hot flash!   Why!
Earlier had a sharp pain in my right arm.
Always having the pain rotate.  Ugh!

Have to get back on my CALCULUS HOMEWORK!

Preparing to reopen JMIA on 08-01-2014.
Must Remodel the BARN!  North side!
Steps/Deck to barn's upstairs.
Walkway to Barn.
More rocks for yard.
Yard furniture and swings.
Volleyball court.
Basketball court.
Tennis court.
Concrete more area by barn.
Covering for entrance.
Need some Flower Pots in front of house and barn.
Drive way around pump for drop off.
Bathroom.

LOTS TO DO!

Mind off stomach and it's calmed down.

JMI



Tuesday, February 4, 2014

My last day at work!

Finish packing.
Copy files.
Turn in keys.
Burn bags.
Scanning.

02-01-2014
Stiill have to check!
Back on Monday!
Still tired from Retirement Party!

02-04-2014
Had my first class with my Boobies #3&4.
Used Youtube and Netflix
Ready to start handwriting!
Fell free to pursue passions.
Teaching.
Tutoring.
Preaching.
Ministering.
Volunteering.
Traveling.

Wednesday, January 29, 2014

RETIREMENT PARTY

Retirement party was excellent!  THANK U JESUS for bringing me this far!  Glory!  Never would have believed I would have made it this far!  But God saw fit to move me along, carry me along, roll me along!  Thank you Lord for such a wonderful accomplishment.   GOOD FOOD. GOOD FRIENDS.  GOOD MUSIC. Had my husband, mother, son, daughter in law, 5 grand kids, my nephew and his girl friend!  Saw friends I had not seen in years!   
Now I am so tired!  My back is killing me.  Know I will fall asleep during dialysis!  But it's time to dialyze!  

All for now!

JMI
01-29-2014

Sunday, January 26, 2014

RETIREMENT #1 (playlist)

RETIREMENT #1 (playlist)

These are the songs at the beginning of my retirement party!

Tuesday, January 21, 2014

Tired!

Five hours at work today!   So tired!  Got a lot done.  But a lot to go to empty my office!  I have had a cold (I think!).  Been coughing up phelm for about two weeks!  Or more.  My eyes are so dry!  

Saturday, January 18, 2014

Much better now


Last night was so tough!   I went to work for ~5 hours on yesterday.  Had to walk to IT so they can reset my blackberry.  My hips cramped so bad!   Had to to sit in the conference room, in the dark of course, until my cramps subsided.  Then went to bathroom.   My hips cramped again so bad I could not use the bathroom.   So I sat there until I could get myself together.  Walked back yo my desk only to really need some water.  So I crippled walk to the break room to get a cup of ice and buy bottle of water.  I had to keep rocking side to side to keep the hip cramps in check.  Man I really know my decision to retire is RIGHT!  Have to take care of myself and get to the gym. For God's sake, I have free gyms at work, that I can use after retirement!  Been watching a lot of tennis.  I have a cold that's lasted two weeks.  I sit in this dialysis chair all day.  I did walk for 2 days, once to the mailbox.  That's a good walk to work out my new aorta valve!  The bottoms of my feet burn so bad.  It's as if I am walking bone on the floor, with no meat padding under foot.  Such a funny description, but that's how I feel.  I cough a lot, also.  But trying to let orange juice clear up the phelm in my nasal passages and chest.  But then I have severe gout pains in my left thumb joint at the hand.  Lord have mercy!  Sweat back my hair every night!  KNOW I AM RAMBLING, but this is how my thoughts are coming out!  You can look at my pic and tell I am whipped.  I threw up all my dinner last night after dialysis!  Man I believe I am taking off too much every night.....1 kilo.  Will start drinking more water during day.  I mostly drink cranberry juice and orange juice when I am at home. About to go to store and get some bottled water.  

Interrupted by phone call.  I spend my every wake hour trying to solve my family's problems.   Lord when I graduate?  All for now!

Thank you Lord for all you do and don't do for me.  Love how you comfort me in my time of need!  
Glory! Hallelulia! Thank you Jesus!

Friday, January 17, 2014

Retirement Party Invitation


I'm going home after 28 years, 4 months.
More time for my grand-babies and of course, REST!
I like dialyzing earlier and not rushing 1 hour to work and 1 hour back!
Can now make sure hubby goes to doctors' visits!  Hahahaaha.  Ahahahahaha
My body says its time, and I'm ready!



Hope to see you all, if you can make it!

JMI
256-694-9451
Army Civil Servant


Wednesday, January 15, 2014

So tired

I have sat hear an hour, comet plating a bath!  Wow!
Retirement is the right decision!

JMI

This cold is whipping my butt

I hurt all over. I cough all night. My muscles are so sore.  This has gone on over a week now! Have cramping all over my body.  Take kilo off every night. Not sure if that's tooooo much.  But I do feel much better with the water off.  

Started my calculus class.  Have a test today.  More later!

JMI

Thursday, January 2, 2014

Dialysis Time

Arterial stick okay pretty much.
Sting with Venus stick.
Had to remove air bubble from Venus.
Doing pretty good 
Arterial hooked up and position, all clamps open.
Same with Venus. 
Launch. Go on cycler and pureflo. 
Watching Al game.  SUGAR BOWL IN NEW ORLEANS, LA.
PREGAME show pretty good.
My husband is an awesome NURSE!

Feel good

I made chicken salad tonite. Thank U Jesus for stamina.  My body is so stiff from cold weather. Did stop by wellness center and got two applications for Irv and I. Called BCBS to see if we get discount membership. Twenty minute wait on call.  Hung up after 6 minutes. Tried website. Still don't know if we will receive discount. It's about $80 per month to join. Really need to exercise more. Will do.  

Irv and I drive to the curb to get the garbage cans and the mail.  Must get back to walking. Once docs figure out what's wrong with Irvs back, hips and knees. That would be great!   

Time to prepare for dialysis!

JMI

Now online health monitor

Just signed up with BCBS!
Ugh!
Now accountable!
Ok! Another New Year! Making plans. Check, first step done. Checking them twice. Ready to move out.
Another days journey and I'm glad about it! Rainy and cold. But, it's warm in my heart to have another chance to serve him!

Wednesday, January 1, 2014

So thankful

Pinterest while dialyzing. Lots of time to think. God has been good to me. My life has been revived from near death so many times! God has things for me to do! Just getting ready so when it's time I can move out and do his will.  It's hard to take little things for granted. Know others with same chronic illness not doing so well. Have to thank God minute by minute. So in love with him for not only what he brought me out of but also what he didn't let me go through. THANK U JESUS! GLORY!


Sent from my iPad

MY BODY IS SO TIRED

Got a lot done today.
Cleaned bedroom.  Back was killing me.
The temp is cool.  My knee is bothering me.
My feet as usual are burning.
Voice over some Exponents Presentation slides.
Preparing slides for Individual Development/Improvement class I would like to teach at ATHENS STATES CENTER FOR LIFELONG LEARNING.  Emailed proposal.
Also want to present a Basic Math Refresher.
Got many ideas.
Hoping my body holds up.
Retiring is best for me.
I took off this week to get appointments for Irv.
Believe we have a good doc for him.
He scheduled blood work.
Gave Irv Rx for his pain med.
Need to follow up with Transcripts to CCC and ASU and CU.
 
JMI
His Servant

THANKFUL!

Just thankful for another year! Thinking if I was in heaven, not ready to go now, God and I would be joking about all the stupid stuff he has gotten me out of. Man there were some duzzies. Wow! I'm still hear! He would ask me what was I thinking. And I would reply that I wasn't. Let emotions take over. But through it all he still loved me and protected me. A little more girded up, I am ready for 2014!

Monday, December 30, 2013

COMTEMPLATIONS

Lots to think about.
Went to CareerBuilders for a second career.
But no that's not where my heart is.
I would like to teach.
Must get busy developing my second career.
Yet.
 
Off the rest of the week.
Trying to get appointments for Irv.
His back has been bothering him since wreck in January.
 
I have been doing pretty good.
Had joint pains when the temp dropped below 32 degrees.
Did not expect this.
Lupus in remission.
Also have gout pain in my left thumb at the wrist. UGH!
The bottom of my feet burn really bad, but I keep on trucking.
 
Every night is the same, MON-FRI.
DIALYSIS. WOW. BUT I'M ALIVE!
I sit there and watch the time, unless I occupy my time on the computer.
I get really sleepy once dialysis starts.
And become alert once it's over.
THE WIERDEST THING EVER!
 
At the cross roads.
Keep the braids or twists.
Get my hair pressed and curled.
Really want the curls for my party on Jan 29th.
HHHHHMMMMM!!!!!!
 
Retirement:
Going from unable to budget on being paid every two weeks to once a month. UGH!
This is going to be funny...... haahh aahhaha ahahaha hahahahaha
 
WOW!
 
JMI
 
 

Thursday, November 7, 2013

Another Day in the land of the Living

10-19-2013
My gout is acting up: left thumb and left ankle.
10-26-2013
Last night's dialysis was rough. I was so sleep (not unusual) and my heart was hurting and could not verbally say how bad it hurt. I just kept saying my chest hurts! May be someThing i should check into. Hmmmmmmm!!!
Bought a carpet steamer. Now the works begin (or my husdands work begins).
Applied to retire on Nov 30, 2013. Thank you Jesus! I need a rest, a LONG rest. Its getting so hard to be engaged in work activities everyday.
10-29-2013
Attend All Hands meeting on yesterday. Great meeting.
Attended Supervisory Leadership Meeting today. Real Great meeting.
Went to retirement briefing on yesterday. Changing retirement date from 11/31/13 to 01/31/14, for tax purposes. Wondered if i could work 30 days more, less on 90 days more. But that gives OPM time to work paperwork. Dont want to start out retirement with no monies for meds.
As soon as i get on the nxstage cycler, i am so tired. Will have more time to sleep in retirement. Smiles. :-).
I am looking forward to working in the ministry of Sis Rhone.
11-07-2013
Just left doctors' office. NO longer have to take Cumadin. Have to take 325 mg of aspirin Ugh! Better than cumadin.

Thursday, October 17, 2013

Feeling Better, Contemplating Future

10-16-2013
I'm back at work, as of Sept. 3rd. It was so hard on my body, mind and soul. Ask myself: WHY AM I DOING THIS? I travel one hour to work, stay eight hours, and travel back home for another hour. I am totaly exhausted at the end of the day. Then, I go through four hours of setting up for dialysis, dialyzing, then tear down the machine. One great thing about dalyzing is the help and support of my husband. It is so Great that he is also an RN. THANK YOU JESUS! I know my journey would be worse without him. Also my mom is a nurse. Between the two of them, I am cared for with love.

I have decided that I will take the next early out. It is best for my health. Will have to take a severe cut in pay. Plus Irv is suffering severely with his knee and hip. Believe he has to have a hip replacement. Ugh! We have to getnhim working again. He hates not working. But, he has spent time homeschooling our grandkids. Really enjoys working with them. I would like to help also when I retire.

10-16-2013
On my way to work. It's raining and I am still shaken since the wreck. I have driven several times since the wreck. Getting more comfortable. Exercising my faith! To God be the glory! So tired. Got through dialyzing late. And of course I watched tv some, played spider solitaire, Word, etc. haha ga ha ha.

THE GOV IS OPEN! All for now!

JMI
@jmitutor

Tuesday, September 24, 2013

Well I think this is it. I feel like I can't work anymore. Sent the following letter to my docs.

I have to  apply for disability or a VERA/VSIP ehich ever comes 1st.
 

 

ATTENTION:                    FAX NUMBER

DR. PHILLIPS,                  256-551-6507

DR. SMELSER,                 256-533-3171

DR. WASHBURN,              256-533-3379

DR. WRIGHT.                   256-539-4099

 

09/22/2013

 

I am going to apply for disability retirement.

I have been sick for the past 3 years.

It became worse after starting dialysis, I am extremely exhausted.

I try very hard to put a smile on my face every day as to not bring down the spirit of others around me (to a fault, even family and friends).

But now it has gotten too much to get up every day, drive an hour, work 8 hours, and then drive an hour home. I leave at 7 a.m. and return at 6 p.m. I am totally wiped out at the end of the day. Felt the same way when I lived in Huntsville and only drove 20 minutes to work. Sometimes I even over sleep and don't get to work until 0830 (suppose to be there at 0800) requiring me to work until 5p.m.

 

I am unable to concentrate at all. I stopped my PHD program because I just could not think and was too exhausted to complete my dissertation. When I came home I would go straight to bed. I tried for 2 years to just develop the methodology and support the need for my research, to prove my hypothesis. Paid $800+ for 4 dissertation courses and could not complete my dissertation. I made "A's" in all my courses, except one, received a "B" in one prior to taking my dissertation courses. I was at the last step of my degree and had to quit, finally accepting "another" Masters.

 

At work I have spent a week trying to complete fill in forms for performance standards for personnel in my branch. In the past I would have completed these in a couple of hours. I can't walk distances. I call in to meetings of my division, because I am unable to walk to the conference room. I am totally exhausted to focus and complete my assigned duties.

 

Everyday my left side (hand, ankle, and feet) swells. I see edema, and take off 1 or 2 KG. But that sometimes results in cramps of my legs and feet. The nurse told me the heart surgery may be the cause of the swelling on the left side. The bottoms of my feet hurt so bad, I hesitate to walk to the bathroom. Not sure if I can make. I always find a reason to stop by someone's cubicle with an extra chair to take a rest (going and coming from the bathroom). I skip lunch because I am too tired to eat or too tired to walk to the lunch room and warm my food. Had lots of food in the refrigerator at work, but too tired and hurting to eat.

 

The following are the requirements for disability retirement and believe I meet the criteria. Please review and complete the attached forms. I will pay any costs associated with completion of the forms. Thanks for your cooperation in this matter. I am available at your convenience for an appointment to discuss this matter.

 

 

 

 

Sincerely,

 

Janice M Isbell

 

 

 

************************see info below*****************

To decide if your disability claim is allowable, OPM considers the documentary evidence you, your agency, and your physician provide. Your claim can be allowed only if the evidence establishes that you meet all of the following criteria:

1. A deficiency in service with respect to performance, conduct or attendance, or, in the absence of any actual service deficiency, a showing that your medical condition is incompatible with other useful service or retention in the position.

2.     A medical condition, which is defined as a health impairment resulting from a disease or injury, including a psychiatric disease.

3.     A relationship between the service deficiency and the medical condition such that the medical condition has caused the service deficiency.

4.     The disability must be expected to last at least one year.

5.     You became disabled while serving under the Federal Employees Retirement System.

6.     The inability of your employing agency to make reasonable accommodation to your medical condition.

7.     The absence of another available position, within the employing agency and commuting area, at the same grade or pay level and tenure, for which you are qualified for

 



--
 

Wednesday, September 18, 2013

ALL GOING OKAY, I GUESS?

Really happy to be back to work.
My iron is extremely low.
I feel like crap.
Irv said I walk like I am barely making it.
My right angle swells EVERYDAY, along with my right hand.
Not sure the cause.
Nurse says it could be a result of my heart operation.
Irv has cancer on his nose.
Will have surgery soon.
He did not make an appointment.
Told the doctor's staff he would call them back.
I know all wil lwork out.  
But, I feel bad beccause he is so worried.
I need to start walking my laps like I did when I got out of the hospital.
Realy do not want a problem with my heart.
Still not sure of the ramifications of CALCIFICATION on my heart.
Lord, lord lord!!!!
Got over the Furlough.  Now in recovery mode.
All will be well.
:-)
 
JMI

--
JANICE MITCHELL ISBELL

Friday, September 13, 2013

WHEN I LOOK BACK OVER MY LIFE!

 
AUG 28, 2013:  3 hospitals stays between June 1st and July 16th; bacteria in blood, heart valve replacement, and gall bladder replacement. BUT GOD SAW FIT TO LET MOW THE LAWN FRIDAY ( 3 hrs) AND SATURDAY (2 hrs). Only got 1/5 of front yard done. Hubby had to put me on and take me off riding lawn mower. Legs still weak Now the rest is left to hubby and son! GOING BACK TO WORK ON TUESDAY! GLORY! THANK YOU JESUS! BLESSED I AM! GOD IS SO GOOOOOOD TO ME! I LOVE HIM LIKE I DO BECAUSE HE IS WHAT HE IS - AMAZING!
 
SEPT 13, 2013:  I know how good God is. I have missed 3 months of work, experienced 3 hospital stays, and finally back to work.
I am moving ahead. THANK U LORD! Feeling much better. Going to doc appts that I have missed during my time in the hospital.
 
 


 

Thursday, July 18, 2013

I AM FEELING MUCH BETTER

Went to Huntsville Hospital again on July 4th.   Weak, vomiting, can't eat, and severe pain in top of my stomach.   Upper GI revealed nothing wrong with stomach.  X-ray revealed fluid in my abdomen and fluid in left lung.  CAT scan of my abdomen revealed stones and sludge in Gall Bladder.  Have to wait for surgery until Cumonin level drops.   Was given two pints of platelets. Surgery on Sunday.   I am so sore from both surgeries (aorta valve and gall bladder).   Legs are so weak making hard to walk even with walker.  My whole rib cage is sore, along with both shoulders!  Could hardly eat while in hospital.  Mouth was sore also.  My hubby stayed every night and most days with me, left only to shower and eat.  I had dialysis 3 days per week while in hospital.  Discharged Tuesday, July 16, 2013.  Thank you Jesus for Healing me again!


@jmitutor Sent from my iPad

Begin forwarded message:

From: JMI YAHOO <jmitutor@yahoo.com>
Date: June 26, 2013 12:12:36 PM CDT
Subject: Re: I AM FEELING MUCH BETTER

Thank God, I'm home!   Took a coumadin test on yesterday.   The rate was high.   So, I'm stopping the coumadin until I retest on Friday then will be told the amount to take nightly.   Chest and top of stomach is sore.  If I forget pain meds, then shoulder bones and ribs ache.    Now I have to watch amount of Vitamin K.   Just dig me hole!!!   Hahaahahah. Ahahhaahahahh.   

I now have a walker at home to do my laps to build up my strength.   Going pretty Goooood!    Can't look cute with a walker!  At least when I get tired, I sit down.   Smiles!

I am getting communion on Sunday afternoon.  Deacon Alf, and Karlos gave me communion while in hospital.  Now I have two others who will come on Sunday afternoons to give me communion.  THANK YOU JESUS!

I am still having a time with talking.  I become out of breath.  But, I know the walking will relieve my shortness of breath.   Plus the chest muscles strain when talking. But this too shall past.   

All for now!

Janice Isbell
His Servant

@jmitutor Sent from my iPad

On Jun 12, 2013, at 6:33 AM, JMI YAHOO <jmitutor@yahoo.com> wrote:

You can't make this stuff up.
Now Docs saying I have to have open heart surgery Friday.  Heart aorta valve is leaking too bad.  
Wow! Only took months to diagnose why I was having chest pains.
Please continue your prayers.  Can't talk on phone.  Get toooooo tired.
Do review text. 256-694-9451.

@jmitutor Sent from my iPad

On Jun 10, 2013, at 4:29 AM, JMI YAHOO <jmitutor@yahoo.com> wrote:

You can't make this stuff up.  I'm back in Huntsville Hospital.   Probably pneumonia. Whooda thunk it.  Told them last week something was wrong.  Pls continue prayers, really bless my spirit!

Janice
His Servant

@jmitutor Sent from my iPad

On Jun 7, 2013, at 4:52 PM, JMI YAHOO <jmitutor@yahoo.com> wrote:

I was in Huntsville Hospital from June 1-6.  My catheter caused bacteria in my blood. I was so sick, went to Athens Hospital, doc in box, then decided to go Huntsville Hospital, over 4 week period.  Am moving around much better. Only this can happen to me.   Hahahaha. AhahahahAh.   I am now infusing an antibiotic after dialysis for 10 days.  

Janice

@jmitutor Sent from my iPad

Friday, April 12, 2013

Well, lots been going on in my life.

04-10-2013
I am still using the catheter.  Had some swelling in my fistula.   Again, I made a batch with the wrong number in the PureFlo.  UGH!!!!!  Had to use bags last night.  Will try sticking tonight.  Irv and I can't seem to agree on the direction of my fistula.  It is shape like a "C" instead of straight like others.  So much to learn but I am up to the challenge!
 
I have been so tired everyday.  Wonder if my hemoglobin is done and I need to start the Epo shots again.  I keep falling asleep at work.  Have toget up and walk around to get myself together.  It's working and I'm getting work done.  My pay check was short last period because I ran out of leave.  But I am told I have had some donations of leave - THANK YOU JESUS!
 
04-12-2013
I am so tired today.  Walking like I am about to kill over any minute.  Know things will get better.  Really trying to complete this 2.5 years journey to retirement.  But wow it is so hard.  Know others with kidney disease and/or lupus know what I am talking about.  Thi sis a day by day, minute by minute, and second by journey each day.  But it is the will and faith that keeps us going.  THANK YOU JESUS FOR MERCY AND GRACE!
 
I have big plans to reopen my school.  I feel passionately about helping kids struggling in a traditional classroom.  I have to get my strength back so I can just start my vision.  I know it takes time, but I am praying daily for the Lord's strength to persevere!!!!
 
ALL FOR RIGHT NOW!!!!!

MRS. JANICE MITCHELL ISBELL
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TWITTER:  @
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Tuesday, March 19, 2013

I AM FEELING BAD, JUST BAD

I am having a had time with the PureFlo.  Twice I had to drain batches because of failure of conductivity tests.  Called tech services aand was told to squeez the lines above the green tabs that straighten the tubing.  It worked and passed conductivity.  Had to drain 3 times the last batch that had expired.  Lord have mercy.  I have had about 4 or 5 fistulograms.  But all is working well.  Will call doc to get the cather out of my chest.  this thing hurts ppretty bad.
 
Usually in a better mood.  But, Saturday, Suday, and Monday I was so tired and week.  Hardly ate anything.  Am losing weight which I do want to lose weight but not this way.  It will come back faster than losing the weight.  I stook myself this morning.  Both arterial and venus had immediate flashback.  But the pressures were going up so had to prop up the needles with gauze.
 
THIS TOO SHALL PASS!
 
JMI
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